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ForwardAn Interactive Workshop to Improve the Journey to Adulthood in Spinal Muscular Atrophy
Program Description
With the arrival of novel therapies that can dramatically shift the path of spinal muscular atrophy (SMA), more and more patients are reaching and navigating adulthood. However, as this transition is a relatively new consideration, few adult-focused clinicians have been asked to manage patients with SMA at all, making the transition to adult care challenging. As such, there are increasing efforts to foster clinical environments that allow patients to continue some or all of their multidisciplinary care at the same facility throughout their lives. This live in-person and virtual program is designed to explore such a model created at the Neurology and Neuromuscular Care Center in Denton, Texas to serve both as an example of problem-solving for common challenges in care transitions as well as an opportunity for open dialogue with attendees surrounding how to best implement and improve similar approaches to care of this population.
Target Audience
This program is intended for general neurologists, neuromuscular specialists, and any multidisciplinary clinicians (e.g., pediatricians, cardiologists, pulmonologists, orthopedists) and care teams involved in “lifespan” or “hybrid” care models for SMA or the transition of patients with SMA from pediatric to adult care.
Learning Objectives
Upon completion of the educational activity, participants should be able to:
- Recognize the evolving presentations of SMA in the treatment era and how they may change as patients age to adequately understand individual needs and establish care plans accordingly
- Discuss the role of FDA-approved SMA therapeutics, as well as their ongoing evaluation in broadening patient populations (e.g., adult, previously treated), in the transition from pediatric to adult care to better coordinate treatment continuity or make appropriate therapeutic adjustments
- Describe effective transition and care continuity strategies for patients with SMA as they enter adulthood to ensure seamless and comprehensive maintenance of care throughout their lifespans
Agenda Coming Soon
Attendees will be provided a tour of the facility at the conclusion of the presentation.
Diana Castro, MD
Board Certified Neurologist and Neuromuscular Physician
Founder and Director Neurology and Neuromuscular Care Center
Founder and Director Neurology Rare Disease Center
Denton, TX
This activity is jointly provided by Medical Education Resources (MER) and Efficient LLC.
Accreditation Statement
In support of improving patient care, this activity has been planned and implemented by Medical Education Resources (MER) and Efficient LLC. MER is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Designation Statement
Medical Education Resources has been authorized by the American Academy of Physician Assistants (AAPA) to award AAPA Category 1.5 CME credit for activities planned in accordance with AAPA CME Criteria. This activity is designated for 1.5 AAPA Category 1 CME Credits. Physician Assistants should only claim credit commensurate with the extent of their participation. Disclosure of Relevant Financial Relationships
Medical Education Resources ensures balance, independence, objectivity, and scientific rigor in all our educational activities. In accordance with this policy, MER identifies relevant financial relationships with its instructors, content managers, and other individuals who are in a position to control the content of an activity. Reported relevant financial relationships are mitigated by MER to ensure that all scientific research referred to, reported, or used in a CE activity conforms to the generally accepted standards of experimental design, data collection, and analysis. MER is committed to providing learners with high-quality CE activities that promote improvements or quality in health care and not the business interest of an ineligible company.
Planners' and Managers' Disclosure
Efficient LLC and Medical Education Resources' planners and managers have no financial relationships to disclose.
Faculty Disclosure
Dr Castro reported the following financial relationships:
- Consulting Fees: Biogen, Genentech, Novartis
- Grants/Research Support: Biogen, SRK
Disclosure of Unlabeled Use/Disclaimer
This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications. The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.
Disclaimer
The content and views presented in this educational activity are those of the authors and do not necessarily reflect those of Medical Education Resources, Efficient LLC, and/or Genentech. The authors have disclosed if there is any discussion of published and/or investigational uses of agents that are not indicated by the FDA in their presentations. Before prescribing any medicine, primary references and full prescribing information should be consulted. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient’s conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities. The information presented in this activity is not meant to serve as a guideline for patient management.
Commercial Support
This continuing education activity is supported by an educational grant from Genentech, a member of the Roche group.